Welcome back lovelies! By now you have probably read my previous blogs including my Facebook story and have an insight into my life.
Firstly, I really want to give a shout out to my girlfriend Jess. Jess is a very busy mother of four children yet she still has time for me. She is the type of friend who you could call at anytime and she would be there, you know the type that you can pour your heart out to and will actually genuinely listen and care expecting nothing in return! Jess is also the type of friend who loves unconditionally, doesn’t judge if she rocks up and there is cat fur everywhere, I have no makeup on (which lately is most days let’s be honest) my hair is a mess and basically life’s a shambles. Don’t ask me why but I always seem to be running late! Our friendship is not one of those run up with a big hug and say, ‘I love you girl’ type of friendships. We don’t really do hugging and all that stuff. Our friendship is built on a solid foundation gossiping about random shit, many laughs, people watching, love of food, mutual dislikes and most of all my love her amazing, wonderful, beautiful children. I literally never spend time with this family and leave feeling deflated. I always leave with a heart and soul that is so full of love and happiness. From the bottom of my heart, thank you Jess for being there not only today but every other day I have needed you. I love you girl 😝 (cringe) haha! ❤️
So onto another discussion, I was lying in bed having my usual seizures when I felt a sharp stabbing pain in my back. Apart from Ross (bless him) giving it a massage there was not a great deal we could do. When I say ‘we’ I mean my partner Ross and I, we are in this together. The seizures continued as they do, each time my back muscles would go into a spasm causing extreme agony. I was in so much pain I couldn’t sleep. I took some Valium to relax the muscles, reduce my seizures and help calm me the F@*# down! I popped a couple of neurofen, rubbed some deep heat on my back and slept on a heat pack. It seemed to temporarily do the trick.
Luckily, this morning I had my first Exercise Physiologist appointment. This was just a ‘get to know me and my condition’ consult but I was able to tell her about what I had experienced with my back pain. She was super lovely and really took the time to listen. I cant wait to start working on relieving some of my back pain as well as getting my strength back to a relatively normal level.
I have a physio appointment tomorrow which is more about shoulder that has been cracking during my dystonic seizures. When I say cracking I mean sounds like someone snapping a stick in half or opening a can of soft drink! It hasn’t actually popped out of the socket (according to the Xray) thank goodness! It is however extremely painful down the back of my right arm. The physio has given me exercises to strengthen my shoulder and tricep muscle. I have to confess, I don’t do them as often as I should 🤫 it sounds like an excuse, I promise it’s not! I very rarely have energy! When I do, It doesn’t last long and I usually have other things to do like chores. Ok, reading this back that sounded like the biggest excuse haha I definitely need to start making my exercises a priority! My physio is so lovely. She recommended that I get the referral from my gp to the exercise Physiologist.
Having lovely medical specialists makes all these appointments so much easier! Next up is my Centrelink medical assessment. Let’s see how that one goes…
To sum up my blog, each of these not so nice experiences are made so much easier, more bareable and nicer for me just by each person simply being kind. Wether it be Jess listening as I choke back my tears or giving me a lift to my appointment, Ross massaging my arm and back, my exercise Physiologist really listening and understanding that I may feel anxious in a gym setting but explaining how we can work around it, my orthopaedic surgeon giving me a gentle rub on the back as if to say ‘I’m sorry we can’t do anything and that you’re going through this’ or my physio always giving me the biggest smile and wishing me a happy weekend while knowing very well that I’m not doing my exercises as much as she would desire! I truly believe no beauty shines brighter than that of a kind heart.
Until next time.
Much Love,
Nat xx